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What's New?
Living With Kidney Cancer days
Check the dates for our nine free to attend, Living With Kidney Cancer days 2019.
Read MorePatient Survey Results Autumn 2018
Almost half of kidney cancer patients suffer initial misdiagnosis. Read the results from our Patient survey, Autumn 2018.
Read MoreKidney Cancer Counselling Service
Kidney Cancer UK and Kidney Cancer Scotland provide the UK's first, free, dedicated Kidney Cancer Counselling Service.
Read MoreClinical Trials
Every year, more than half a million people help the NHS improve healthcare and develop life-saving treatments by taking part in clinical trials.
Read More-
European Commission approves nivolumab ipilimumab combo
The European Commission has approved nivolumab in combination with low-dose ipilimumab for first-line treatment of patients with intermediate and poor risk advanced renal cell carcinoma (RCC).
The company says the approval marks the first of an immuno-oncology (I-O) combination therapy for patients with this type of cancer in the European Union.
Clearance is based on results from the Phase III CheckMate-214 clinical trial, which was stopped early following an interim analysis showing that the Opdivo (nivolumab) and Yervoy (ipilimumab) combination showed a significant increase in overall survival, with a 37% decreased risk of death compared to currently used, Sutent (sunitinib).
The combination also demonstrated a higher objective response rate of 41.6%, versus 26.5% for Sutent.
“Currently, less than 50% of patients with metastatic renal cell carcinoma survive beyond two years, and there is almost no complete remission observed, which underscores the need for new treatments for this disease,” said Bernard Escudier, ex-chairman of the Genitourinary Oncology Committee, Institut Gustave Roussy.
He continued, “Today’s approval offers patients in the European Union a first-line treatment option that has demonstrated a complete response rate of almost 10% and a significant improvement in overall survival with fewer Grade 3 and 4 adverse reactions compared to sunitinib.”
READ THE FULL STORY ON PharmaTimes HERE
Kidney Cancer Awareness Week 4-8 February 2019
‘Plant a seed for research’ in Kidney Cancer Awareness Week
Sunflower
We are are pleased to announce that Monday 4th February to Friday 8th February will be our annual Kidney Cancer Awareness Week 2019 (#KCAW2019) across the United Kingdom and culminating with Green Friday on 8th February.
This year we are calling for the Government to invest in research for a national kidney cancer screening programme as our UK patient survey revealed that 47% of patients are diagnosed at stage 3 or later. This is not acceptable and the Governments own pledge to diagnose 75% of cancers at stage 1 or 2 by 2028 in their recently announced ‘NHS Long Term Plan’ is too far in the
future. This is needed within five years.Kidney Cancer UK and Kidney Cancer Scotland are currently supporting research into a national kidney cancer screening programme and ask you for your support by joining in our ‘Plant a seed for research’ campaign. For a minimum donation of £5.00 we will send you a pack of seed to plant from which hope and new life will grow through the research we support. The seed will be loose packed and randomly selected from Cornflower, Sunflower, Nasturtium and Corn Marigold. 100% of the profit from your donation will go to research into kidney cancer. You can join in ‘Plant a seed for research’ by clicking HERE.
Once your seeds start to bloom in the summer you can share pictures of your lovely flowers via our Facebook page.
Kidney Cancer Awareness Week culminates with Green Friday (8th February) when we ask everyone to wear as much green as possible to show their support for all kidney cancer patients, their families and carers. We want to drive conversations and move kidney cancer in the the general awareness so the public are aware and GP’s, consultants and all medical specialists have kidney cancer high on their radar when patients present to them. On Green Friday we would love for you to share your pictures via our Facebook page.
Despite being the seventh most common cancer in the UK: the fifth most common in men and the tenth in women, kidney cancer remains relatively unheard of. Each year, in the UK 12,500 people are diagnosed with kidney cancer and it accounts for three per cent of all new diagnoses. Forty-two per cent of kidney cancer cases are linked to major lifestyle factors; including smoking and obesity.
Corn Marigold
We will continue to highlight findings of our Autumn Kidney Cancer Patient Survey 2018 with the objective of increasing the nation’s awareness and improving conditions for those with kidney cancer.
It is important to always talk about kidney cancer, the importance of early diagnosis and promote awareness that this is a silent killer; we simply do not know who it will strike next. Be aware of the 10 signs of kidney cancer:
Cornflower
1. Blood in the urine
2. Persistent low back pain
3. Pain in the side, between the ribs and hipbone
4. A lump or mass in the area of the kidneys
5. Persistent high temperature
6. Night sweats
Nasturtium
7. Persistent cough
8. Tiredness
9. Weight loss
10. Loss of appetiteRead our Kidney Cancer UK Patient Survey here:
As well as the highlighting of the survey, an online social media campaign will run in the weeks leading up to, and on the day with special messaging using the hashtag #KCAW2019 so everyone can instantly join the online conversation.
JOIN THE CONVERSATION, SPREAD THE WORD!
With this Kidney Cancer Awareness Week we want everyone to unite in the fight against kidney cancer, start a conversation and keep talking and ask the question; What will you do to ‘Make some noise about kidney cancer’ in Kidney Cancer Awareness Week 2019?
Use the hashtag across all social media platforms #KCAW2019
Through this simple act we can make a difference and save lives.
Living With Kidney Cancer days
We are delighted to announce our 2019 Living With Kidney Cancer days.
We are hosting nine Living With Kidney Cancer days around the UK in 2019. These days are designed to be relaxed, informal and offer you the opportunity to become more informed through presentations from health professionals on a variety of topics relevant to your condition. These will include surgery options, oncological treatments, dealing with side-effects as well as the opportunity to meet with, and share your experiences with, other patients and their loved ones.
Once confirmed and available you can view the agenda for a specific day, click the link below for the day you wish to attend. A PDF of the agenda (when available) will open when you click the corresponding link below your selected venue. You can then view and close or download the agenda to keep.
All Living With Kidney Cancer Days are free to attend, lunch and refreshments are provided and reasonable travel expenses may be available. Please contact us for more information before committing to any travel plans. If you have any special dietary requirements (vegetarian, vegan, any allergies etc.) please let us know at the time of booking your ticket.
Once the location has been confirmed you will be able to book your place by clicking on the ‘BOOK TICKETS FOR…’ date you would like to attend and a link will open. ALL DAYS ARE FREE TO ATTEND.
Living With Kidney Cancer days for 2019:
Newcastle-Upon-Tyne – Wednesday 1st May BOOK YOUR FREE TICKET
Copthorne Hotel, The Close, Quayside, Newcastle upon Tyne NE1 3RTAshford (Kent) – Thursday 20th June
The Holiday Inn, Canterbury Road, Ashford, Kent, TN24 8QQBelfast – (Date TBA)
Aberdeen – June – (Date TBA)
Birmingham – 19th September
Novotel, 70 Broad Street, BirminghamSwansea- October – (Date TBA)
Manchester – November – (Date TBA)
Glasgow – November – (Date TBA)
PAST Living With Kidney Cancer days
2019
Plymouth – Thursday February 7th – The Crowne Plaza Hotel, Armada Way, Plymouth, PL1 2HJ
2018
London: 7th June 11:45am – 15:00pm – Keats House, Keats Grove, Hampstead, London, NW3 2RR
- Click for London Agenda RECOMMENDATIONS FROM LONDON ATTENDEES:
“As always, come away feeling more informed, positive and not alone in this journey.”
Rose Killick, London 2018 - “They gave me information that the hospital didn’t!”
John Taylor, London 2018
Exeter: 11th July 9:45am – 15:30-2pm Buckerall Lodge –Topsham Road, Exeter EX2 4SQ
Click for Exeter Agenda RECOMMENDATIONS FROM EXETER ATTENDEES:
- “Very comprehensive informative presentations”
Ian Pring, Exeter 2018 - “An excellent, informative day which would help all renal cancer patients (and professionals)”
Stephen Driscoll, Exeter 2018
Aberdeen: 30th August 9.45am- 15.30pm DoubleTree by Hilton, Aberdeen City Centre AB24 5EF
Click for Aberdeen Agenda (Subject to change)
Birmingham: 13th September 9:45am -15:00pm Novotel Birmingham Centre hotel, 70 Broad Street, Birmingham
Click for Birmingham Agenda (Subject to change) RECOMMENDATIONS FROM BIRMINGHAM ATTENDEES:
- “The information day has helped me realise that I am not alone and that there are people positively dealing with the same issues as me.”
Nathan Kennedy, Brighton 2018 - “The most informative point of the process I have had far more than the NHS.”
Anonymous, Brighton 2018
Brighton: 17th October 9:45 – 3:00 The American Express Community Stadium Village Way, Brighton BN1 9BL
Click for Brighton Agenda (Subject to change) RECOMMENDATIONS FROM BRIGHTON ATTENDEES:
- “Kidney Cancer UK is such an amazing charity and today has been so beneficial due to the information and presentations given.”
Peter Wynn, Brighton 2018 - ‘Great help gave me better understanding of kidney cancer.’
John Mence, Brighton 2018
Stirling: 7th November 9.45am- 15.30pm Colessio Hotel Stirling FK8 1DX
Manchester: 22nd November , 9:45am – 15:00pm The Lowry, Pier 8, Salford Quays, M50 3AZ
Click for Manchester Agenda RECOMMENDATIONS FROM MANCHESTER ATTENDEES:
- “Very helpful and illuminating day.”
Jeffrey Wynn Davies, Manchester 2018 - “A very informative day, and it is good to meet and talk to other people who also have this illness.”
Carol Ives, Manchester 2018 - “Bringing people together in similar situations helps widen support and understanding.”
Ross Mallett, Manchester 2018
These are the pending towns for our Living With Kidney Cancer days 2019.
*All details are correct at time of publication and all agendas are subject to change without notice.
These days are supported by unrestricted educational grants from:
- Click for London Agenda RECOMMENDATIONS FROM LONDON ATTENDEES:
Walk For A Cure 2019
Jane Cure and James Whale
We are delighted to invite you to take part in Walk For A Cure, although it is focusing on walking in May, you can arrange a ‘Walk for A Cure’, any time of the year, to help raise funds for research and to support kidney cancer patients, carers and their families across the UK.
You could walk with a friend, start a walking group or if you are a rambling group, create a unique event.
Organised Walking Events in 2019
Kiltwalk 2019 – for more information click here
Glasgow 28th April Aberdeen 2nd June Dundee 18th August Edinburgh 15th September
Ultra Challenges 2019 – for more information click here
9 great events across the UK, for a wide range of fitness levels and you can choose whether to walk it, jog it or run it.
To join in with Walk For A Cure you can register by contacting us at fundraising@kcuk.org.uk and set up your own JustGiving page via the Walk for A Cure CampaignKidney Cancer UK Walk for A Cure JustGiving Campaign here
Kidney Cancer Scotland Walk for A Cure JustGiving Campaign here
Suggested Routes
Why this event is called ‘Walk for A Cure’
In October of 2010 kidney cancer patient and fundraiser Adrian ‘Ade’ Cure was a guest speaker at our President’s Dinner at the House of Lords. He was a proud, strong, determined man and raised over £30,000 for kidney cancer, most of which was donated to us, before he died of kidney cancer in March 2011 after a four-year fight.
Jane Cure and walkers
In memory of Ade and all he had achieved, his brother-in-law Andy Coleman and Jane (Ade’s wife in picture on the left) organised the ‘Walk for A. Cure’ fundraising event, and were determined to smash the £10,000 fundraising target set, they raised over £18,000 to support the kidney cancer community.
You can walk as far as you wish, by yourself or as a group!
Walk for A Cure Fundraising Packs Coming soon..
Natalie Newnes: Born to Run
Following a weight loss plan and giving birth to a lovely baby boy, Natalie Newnes started running marathons. Life could not have been better for Natalie until pains in her side revealed she had kidney cancer. This is Natalie’s story:
“In January 2012, I joined Slimming World as I needed to lose weight so I could have fertility treatment as my husband Shaun and I were struggling to conceive. Ironically, after a year I lost 4 stone and fell pregnant naturally and In 2014 I gave birth to a gorgeous baby boy we named Oscar.
I made it my mission to become a healthier and fitter mam for Oscar and in January 2016 I decided to follow in my husband’s footsteps and take up running. Before long I was signing up for my first half marathon!
As the months past and the half-marathon drew closer, I started to suffer with pains in my right side. These felt similar to a stitch and I thought it was associated to running so I put it to the back of my mind and continued training hard. The day of my race I suffered really bad pains but again I brushed them off. As they continued after the
run I eventually went to the doctors who referred me for a ultrasound scan. Within a few hours of the 
scan my doctor called to say they found a 5cm lump and needed to do a CT scan to investigate further. I had the scan and after having an inconclusive biopsy, the doctors made the decision to remove my right kidney as they said it was very likely it was high grade cancer.So, in April 2017 the whole kidney was removed by keyhole surgery (a laparoscopic nephrectomy). Thankfully it was low grade cancer and no further treatment was needed. After having the all clear to run again, I decided to enter the Great North Run ballot and was surprised when I actually secured a place! I trained hard but healing from my surgery slowed things down. I received another blow three-weeks before my race I was told I have stage 3 chronic kidney disease in my remaining kidney. I knew after everything that I had been through, this news wasn’t going to stop me or keep me from doing what I’ve always dreamed of doing. So, on 9th
September 2018 I completed the Great North Run in a great time of 3 hours 20 minutes! It was such an emotional day, an amazing experience and I am finally proud of myself for completing it after what I’ve gone through and happy to say, I’m also 13 stone lighter.
I have had amazing support from family, friends and work colleagues who have all sponsored me, raising a fantastic amount of money for Kidney Cancer UK, an amazing charity. £610 raised.”
You can still support Natalie’s fundraising by visiting her Just Giving page HERE
