Survey -Developing a tool to personalise treatment in small kidney tumours
If you are taking this survey on a mobile device, please CLICK HERE.
Here you will find information to help you if you are newly diagnosed,
undergoing or following treatment on a wide range of subject relating to
including Symptoms, treatments, living with kidney cancer and information videos
If you need support and would like to talk to our Counsellor or Careline, are in
need of literature including our Living With Kidney Cancer booklets, would like to view
our wide range of informative exercise, dietary or yoga and more videos, this is the area for you.
Here you will find a programme to help you find a clinical trial to suit you, information relating
to research programmes we are funding ad how you can apply for such fund along
with information on our Peer Review process.
Every pound you donate and every minute of your time makes a difference to
people with, or those effected by, kidney cancer. Here you will find the many ways to
fundraise, easily donate, set up standing order which helps us to help others.
If you are taking this survey on a mobile device, please CLICK HERE.
The company says the approval marks the first of an immuno-oncology (I-O) combination therapy for patients with this type of cancer in the European Union.
Clearance is based on results from the Phase III CheckMate-214 clinical trial, which was stopped early following an interim analysis showing that the Opdivo (nivolumab) and Yervoy (ipilimumab) combination showed a significant increase in overall survival, with a 37% decreased risk of death compared to currently used, Sutent (sunitinib).
The combination also demonstrated a higher objective response rate of 41.6%, versus 26.5% for Sutent.
“Currently, less than 50% of patients with metastatic renal cell carcinoma survive beyond two years, and there is almost no complete remission observed, which underscores the need for new treatments for this disease,” said Bernard Escudier, ex-chairman of the Genitourinary Oncology Committee, Institut Gustave Roussy.
He continued, “Today’s approval offers patients in the European Union a first-line treatment option that has demonstrated a complete response rate of almost 10% and a significant improvement in overall survival with fewer Grade 3 and 4 adverse reactions compared to sunitinib.”
READ THE FULL STORY ON PharmaTimes HERE
We are are pleased to announce that Monday 4th February to Friday 8th February will be our annual Kidney Cancer Awareness Week 2019 (#KCAW2019) across the United Kingdom and culminating with Green Friday on 8th February.
This year we are calling for the Government to invest in research for a national kidney cancer screening programme as our UK patient survey revealed that 47% of patients are diagnosed at stage 3 or later. This is not acceptable and the Governments own pledge to diagnose 75% of cancers at stage 1 or 2 by 2028 in their recently announced ‘NHS Long Term Plan’ is too far in the future. This is needed within five years.
Kidney Cancer UK and Kidney Cancer Scotland are currently supporting research into a national kidney cancer screening programme and ask you for your support by joining in our ‘Plant a seed for research’ campaign. For a minimum donation of £5.00 we will send you a pack of seed to plant from which hope and new life will grow through the research we support. The seed will be loose packed and randomly selected from Cornflower, Sunflower, Nasturtium and Corn Marigold. 100% of the profit from your donation will go to research into kidney cancer. You can join in ‘Plant a seed for research’ by clicking HERE.
Once your seeds start to bloom in the summer you can share pictures of your lovely flowers via our Facebook page.
Kidney Cancer Awareness Week culminates with Green Friday (8th February) when we ask everyone to wear as much green as possible to show their support for all kidney cancer patients, their families and carers. We want to drive conversations and move kidney cancer in the the general awareness so the public are aware and GP’s, consultants and all medical specialists have kidney cancer high on their radar when patients present to them. On Green Friday we would love for you to share your pictures via our Facebook page.
Despite being the seventh most common cancer in the UK: the fifth most common in men and the tenth in women, kidney cancer remains relatively unheard of. Each year, in the UK 12,500 people are diagnosed with kidney cancer and it accounts for three per cent of all new diagnoses. Forty-two per cent of kidney cancer cases are linked to major lifestyle factors; including smoking and obesity.
We will continue to highlight findings of our Autumn Kidney Cancer Patient Survey 2018 with the objective of increasing the nation’s awareness and improving conditions for those with kidney cancer.
It is important to always talk about kidney cancer, the importance of early diagnosis and promote awareness that this is a silent killer; we simply do not know who it will strike next. Be aware of the 10 signs of kidney cancer:
1. Blood in the urine
2. Persistent low back pain
3. Pain in the side, between the ribs and hipbone
4. A lump or mass in the area of the kidneys
5. Persistent high temperature
6. Night sweats
7. Persistent cough
8. Tiredness
9. Weight loss
10. Loss of appetite
Read our Kidney Cancer UK Patient Survey here:
As well as the highlighting of the survey, an online social media campaign will run in the weeks leading up to, and on the day with special messaging using the hashtag #KCAW2019 so everyone can instantly join the online conversation.
JOIN THE CONVERSATION, SPREAD THE WORD!
With this Kidney Cancer Awareness Week we want everyone to unite in the fight against kidney cancer, start a conversation and keep talking and ask the question; What will you do to ‘Make some noise about kidney cancer’ in Kidney Cancer Awareness Week 2019?
Use the hashtag across all social media platforms #KCAW2019
Through this simple act we can make a difference and save lives.
We are hosting nine Living With Kidney Cancer days around the UK in 2019. These days are designed to be relaxed, informal and offer you the opportunity to become more informed through presentations from health professionals on a variety of topics relevant to your condition. These will include surgery options, oncological treatments, dealing with side-effects as well as the opportunity to meet with, and share your experiences with, other patients and their loved ones.
Once confirmed and available you can view the agenda for a specific day, click the link below for the day you wish to attend. A PDF of the agenda (when available) will open when you click the corresponding link below your selected venue. You can then view and close or download the agenda to keep.
All Living With Kidney Cancer Days are free to attend, lunch and refreshments are provided and reasonable travel expenses may be available. Please contact us for more information before committing to any travel plans. If you have any special dietary requirements (vegetarian, vegan, any allergies etc.) please let us know at the time of booking your ticket.
Once the location has been confirmed you will be able to book your place by clicking on the ‘BOOK TICKETS FOR…’ date you would like to attend and a link will open. ALL DAYS ARE FREE TO ATTEND.
Newcastle-Upon-Tyne – Wednesday 1st May BOOK YOUR FREE TICKET
Copthorne Hotel, The Close, Quayside, Newcastle upon Tyne NE1 3RT
Ashford (Kent) – Thursday 20th June
The Holiday Inn, Canterbury Road, Ashford, Kent, TN24 8QQ
Belfast – (Date TBA)
Aberdeen – June – (Date TBA)
Birmingham – 19th September
Novotel, 70 Broad Street, Birmingham
Swansea- October – (Date TBA)
Manchester – November – (Date TBA)
Glasgow – November – (Date TBA)
Plymouth – Thursday February 7th – The Crowne Plaza Hotel, Armada Way, Plymouth, PL1 2HJ
London: 7th June 11:45am – 15:00pm – Keats House, Keats Grove, Hampstead, London, NW3 2RR
Exeter: 11th July 9:45am – 15:30-2pm Buckerall Lodge –Topsham Road, Exeter EX2 4SQ
Click for Exeter Agenda RECOMMENDATIONS FROM EXETER ATTENDEES:
Aberdeen: 30th August 9.45am- 15.30pm DoubleTree by Hilton, Aberdeen City Centre AB24 5EF
Click for Aberdeen Agenda (Subject to change)
Birmingham: 13th September 9:45am -15:00pm Novotel Birmingham Centre hotel, 70 Broad Street, Birmingham
Click for Birmingham Agenda (Subject to change) RECOMMENDATIONS FROM BIRMINGHAM ATTENDEES:
Brighton: 17th October 9:45 – 3:00 The American Express Community Stadium Village Way, Brighton BN1 9BL
Click for Brighton Agenda (Subject to change) RECOMMENDATIONS FROM BRIGHTON ATTENDEES:
Stirling: 7th November 9.45am- 15.30pm Colessio Hotel Stirling FK8 1DX
Manchester: 22nd November , 9:45am – 15:00pm The Lowry, Pier 8, Salford Quays, M50 3AZ
Click for Manchester Agenda RECOMMENDATIONS FROM MANCHESTER ATTENDEES:
These are the pending towns for our Living With Kidney Cancer days 2019.
*All details are correct at time of publication and all agendas are subject to change without notice.
These days are supported by unrestricted educational grants from:
Jane Cure and James Whale
You could walk with a friend, start a walking group or if you are a rambling group, create a unique event.
Kiltwalk 2019 – for more information click here
Glasgow 28th April Aberdeen 2nd June Dundee 18th August Edinburgh 15th September
Ultra Challenges 2019 – for more information click here
9 great events across the UK, for a wide range of fitness levels and you can choose whether to walk it, jog it or run it.
Kidney Cancer UK Walk for A Cure JustGiving Campaign here
Kidney Cancer Scotland Walk for A Cure JustGiving Campaign here
In October of 2010 kidney cancer patient and fundraiser Adrian ‘Ade’ Cure was a guest speaker at our President’s Dinner at the House of Lords. He was a proud, strong, determined man and raised over £30,000 for kidney cancer, most of which was donated to us, before he died of kidney cancer in March 2011 after a four-year fight.
Jane Cure and walkers
In memory of Ade and all he had achieved, his brother-in-law Andy Coleman and Jane (Ade’s wife in picture on the left) organised the ‘Walk for A. Cure’ fundraising event, and were determined to smash the £10,000 fundraising target set, they raised over £18,000 to support the kidney cancer community.
“In January 2012, I joined Slimming World as I needed to lose weight so I could have fertility treatment as my husband Shaun and I were struggling to conceive. Ironically, after a year I lost 4 stone and fell pregnant naturally and In 2014 I gave birth to a gorgeous baby boy we named Oscar.
I made it my mission to become a healthier and fitter mam for Oscar and in January 2016 I decided to follow in my husband’s footsteps and take up running. Before long I was signing up for my first half marathon!
As the months past and the half-marathon drew closer, I started to suffer with pains in my right side. These felt similar to a stitch and I thought it was associated to running so I put it to the back of my mind and continued training hard. The day of my race I suffered really bad pains but again I brushed them off. As they continued after the run I eventually went to the doctors who referred me for a ultrasound scan. Within a few hours of the
scan my doctor called to say they found a 5cm lump and needed to do a CT scan to investigate further. I had the scan and after having an inconclusive biopsy, the doctors made the decision to remove my right kidney as they said it was very likely it was high grade cancer.
So, in April 2017 the whole kidney was removed by keyhole surgery (a laparoscopic nephrectomy). Thankfully it was low grade cancer and no further treatment was needed. After having the all clear to run again, I decided to enter the Great North Run ballot and was surprised when I actually secured a place! I trained hard but healing from my surgery slowed things down. I received another blow three-weeks before my race I was told I have stage 3 chronic kidney disease in my remaining kidney. I knew after everything that I had been through, this news wasn’t going to stop me or keep me from doing what I’ve always dreamed of doing. So, on 9th September 2018 I completed the Great North Run in a great time of 3 hours 20 minutes! It was such an emotional day, an amazing experience and I am finally proud of myself for completing it after what I’ve gone through and happy to say, I’m also 13 stone lighter.
I have had amazing support from family, friends and work colleagues who have all sponsored me, raising a fantastic amount of money for Kidney Cancer UK, an amazing charity. £610 raised.”