Recently Diagnosed

Welcome to Kidney Cancer UK. Here you will find information to help you if you are newly
diagnosed, undergoing or following treatment on a wide range of subject relating to
including Symptoms, treatments, living with kidney cancer and information videos

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Support & Wellbeing

If you need support and would like to talk to one of our Health Professional team
running our free Careline and Counselling service, want a copy of our Living With Kidney
Cancer booklets, or maybe view our wide range of information, exercise, dietary videos,
this is the area for you.....We do more than holding hands

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Clinical Trials & Research

Here you will find a programme to help you find a clinical trial to suit you, information relating
to research programmes we are funding ad how you can apply for such fund along
with information on our Peer Review process.

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Fundraise

Every pound you fundraise or donate and every minute of your time makes a
difference to people with, or those effected by, kidney cancer. Here you will find the
many ways to fundraise, easily donate or set up standing order which helps us to help
others.

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Latest News

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#LWKC Webinars 2020

23 Nov 2020
During COVID-19 and the requirements to socially distance, we are disappointed that we are not able to hold our hugely popular Living With Kidney Cancer Days. So, we have reinvented them as #LWKC Webinars and they are going online via Zoom. To join any of our webinars (all free) please email hello@kcuk.org.uk stating the name and date of the webinar you would like to join and we will send you the log in details. You will not be able to join without the details so, please email early.

To adjust to these difficult times we have already successfully established our very popular ‘Coffee Cake & Chat’ online groups, where we welcome one-and-all to join us in these informal and relaxed groups. We are now delighted to launch our newly focused #LWKC Webinars which will feature key topics, important to patients, carers and their families right across the UK for each of the events. We will be welcoming key speakers from all areas of kidney cancer treatments and support including world-renowned consultants, surgeons, radiologists and CNS’s to help inform and answer any questions.

We will present #LWKC Webinars on a range of relevant topics you maybe interested in and be looking for support and advice on, including surgery, treatment, side effects, clinical trials, work and finance. All of our webinars will be delivered by expert speakers who will really help inform you, including people speaking about their own experience of treatment and living with and beyond kidney cancer.

All dates and details of our #LWKC Webinars and our Coffee, Cake and Chat meetings will be promoted across all our social media platforms on Kidney Cancer UK Facebook, Kidney Cancer Scotland Facebook. Please look at the ‘Events’ section or click the link next to the event you would like to attend, but please, make sure you book your place as this is invitation only.

#LWKC Webinars for 2020

Let’s talk about Work #LWKC Webinar

Monday 7th December

This #LWKC webinar focuses on work issues related to kidney cancer.

Speakers

Ashleigh Scott, specialist health and work practitioner, Beatson Cancer Charity–planning a supported return to or staying in the workplace

Darren Roberts- a perspective of working while on treatment for kidney cancer

Elaine Boyd- a perspective of working while caring for a loved one with kidney cancer

Speakers will be joined by the rest of the team of specialist health and work practitioners for a question and answer session at the end.

To register for this webinar click here

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Treating Small Kidney Tumours – an overview of surgery and cryoablation

Friday 9th October 10:00 – 11:00

This #LWKC Webinar will focus on an overview of cryoablation and surgical treatment and feature guest speakers including Dr Des Alcorn and Mr Grenville Oades, with patient story from Mike Tunstall. Please email hello@kcuk.org.uk to receive your personal invite including the Zoom log in details. Please also please include any questions you might like to ask in the webinar within your email.

Watch the video of the webinar

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Cancer & Money #LWKC Webinar

Tuesday 29th September 10:00-11:00

Our next online webinar is about benefits and what might you be entitled too. Join us and Claire Farrell from Benefits Advice Shop. Please email hello@kcuk.org.uk to receive you personal invite including the Zoom log in details. Please also include any questions you might like to ask in the webinar within your email.

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PAST Living with Kidney Cancer days

What attendees have said about our past Living with Kidney Cancer days:

AM, Plymouth ; “Very informative day”

RT, Plymouth ; “The day was good to access information from medical professionals and other patients.”

JT, London ; “They gave me information that the hospital didn’t”

Anonymous, Birmingham ; “The most informative point of the process I have had, far more than the NHS.”

2020

Leeds – 7th February 2020 (Green Friday) Click to read Agenda

2019

Glasgow – 20th November – Hilton Grosvenor, 1-9 Grosvenor Terrace, Glasgow

Click to read the agenda

Liverpool – 15th November – Marriott Hotel, One Queen Square, Liverpool, L1 1RH

Click to read the agenda

Swansea – Friday 18th October – The Dragon Hotel, 39 The Kingsway, Swansea, SA1 5LS

Click to read the agenda

Birmingham – Thursday 19th September – Novotel, 70 Broad Street, Birmingham

Click to read the agenda

Ashford (Kent) – Thursday 20th June – The Holiday Inn, Canterbury Road, Ashford, Kent, TN24 8QQ

Click to read the agenda

Plymouth – Thursday, February 7th – The Crowne Plaza Hotel, Armada Way, Plymouth, PL1 2HJ

Click for agenda COMMENTS FROM ATTENDEES:

“Very informative day”
A M, Plymouth 2019;

“The day was good to access information from medical professionals and other patients.”
R T, Plymouth 2019;

Newcastle-Upon-Tyne – Wednesday 1st May – Copthorne Hotel, The Close, Quayside, Newcastle upon Tyne NE1 3RT

Click for agenda COMMENTS FROM ATTENDEES:

“Reassured that my doubts and fears were well addressed during the day by both the medical staff and patients.”
RS, Newcastle

“(the) day was wonderful, I didn’t feel alone when here”
Anonymous, Newcastle

“A very informative day, and it was good to meet other people who have had the same condition.”
C, Leeds

2018

London: 7^th June 11:45am – 15:00pm – Keats House, Keats Grove, Hampstead, London, NW3 2RR

Click for London Agenda COMMENTS FROM LONDON ATTENDEES:
“As always, come away feeling more informed, positive and not alone in this journey.”
Rose Killick, London 2018

“They gave me information that the hospital didn’t!”
John Taylor, London 2018

Exeter: 11^th July 9:45am – 15:30-2pm Buckerall Lodge –Topsham Road, Exeter EX2 4SQ

Click for Exeter Agenda COMMENTS FROM EXETER ATTENDEES:

“Very comprehensive informative presentations”
Ian Pring, Exeter 2018

“An excellent, informative day which would help all renal cancer patients (and professionals)”
Stephen Driscoll, Exeter 2018

Aberdeen: 30^th August 9.45am- 15.30pm DoubleTree by Hilton, Aberdeen City Centre AB24 5EF

Click for Aberdeen Agenda (Subject to change)

Birmingham: 13^th September 9:45am -15:00pm Novotel Birmingham Centre hotel, 70 Broad Street, Birmingham

Click for Birmingham Agenda (Subject to change) COMMENTS FROM BIRMINGHAM ATTENDEES:

“The information day has helped me realise that I am not alone and that there are people positively dealing with the same issues as me.”
Nathan Kennedy, Brighton 2018

“The most informative point of the process I have had far more than the NHS.”
Anonymous, Brighton 2018

Brighton: 17th October 9:45 – 3:00 The American Express Community Stadium Village Way, Brighton BN1 9BL

Click for Brighton Agenda (Subject to change) COMMENTS FROM BRIGHTON ATTENDEES:

“Kidney Cancer UK is such an amazing charity and today has been so beneficial due to the information and presentations given.”
Peter Wynn, Brighton 2018

‘Great help gave me better understanding of kidney cancer.’
John Mence, Brighton 2018

Stirling: 7^th November 9.45am- 15.30pm Colessio Hotel Stirling FK8 1DX

Click for Stirling Agenda

Manchester: 22^nd November , 9:45am – 15:00pm   The Lowry, Pier 8, Salford Quays, M50 3AZ

Click for Manchester Agenda COMMENTS FROM MANCHESTER ATTENDEES:

“Very helpful and illuminating day.”
Jeffrey Wynn Davies, Manchester 2018

“A very informative day, and it is good to meet and talk to other people who also have this illness.”
Carol Ives, Manchester 2018

“Bringing people together in similar situations helps widen support and understanding.”
Ross Mallett, Manchester 2018

*All details are correct at time of publication and all agendas are subject to change without notice.

The following companies have supported the 2019 events with an unrestricted educational grant:
#GivingTuesday

20 Nov 2020
Giving Tuesday is an international movement created to support charities through donating, volunteering and other forms of charitable giving. It’s a day to give back by supporting a cause close to your heart, doing something good for your community or helping someone in need.

2020 has been an unprecedented year for everyone, the pandemic has had a significant impact on our income and the way we operate. Despite this, we at the charity have shown incredible resilience to ensure we provide uninterrupted services to kidney cancer patients across the country.

We are asking you to join the campaign, help us and give something this Giving Tuesday.

Here is how you can help;

‘Like’ and ‘Share’ our post’s with others on social media, by doing this you’ll help us raise awareness of kidney cancer to the wider public.

Why not volunteer with us – click here to find out how

Participate in our charity events.

Set up your own crowd fundraising page, and encourage others to make a donation.

Set up a regular giving payment – click here to find out how

Make a single donation – click here to donate now

Whether it’s your time, or support in any form, we want to give you a chance to take something positive from this year and help to make a real difference to the kidney cancer community.
Christmas Raffle 2020

09 Nov 2020
We are very pleased to announce our first Virtual Christmas Raffle to help us support research into the causes, early diagnosis and treatments of kidney cancer.

What you could win:
First Prize £700
Second Prize £200
Third Prize £100

Our Virtual Christmas raffle offers a win-win situation. Along with the chance of winning £700, you can also take comfort in the knowledge that you’ll be making a difference to kidney cancer patient’s lives through your purchase. Virtual tickets are £2 each and you could find yourself with a surprise cash prize – and just in time for Christmas.

£2 per entry (all virtual tickets are randomly generated and will be emailed to you after payment)

Click here to play your part and enter now

If you would like more than one entry, please change the amount of tickets as required.

Thank you for your support & Good Luck!

Terms & Conditions

Entry closes on 18^th December 2020 and the independently randomly generated draw will take place 21st December 2020.

Winners will be notified via email on the day of the draw.

The list of winning entries will be made available on our website seven-days after the final draw, in print (on request) or by calling 01223 870008

Virtual tickets may be purchased by calling 01223 870008

The maximum number of virtual tickets purchased by one individual is 100, if you would like to purchase more please contact us on 01223 870008

By purchasing a virtual ticket you agree to the full terms and conditions.

To lodge any form of complaint, in the first instance please call our supporter team on 01223 870008

All profits from our Virtual Christmas Raffle will be used to fund research into the causes, early diagnosis and treatments of kidney cancer

Full Terms & Conditions can be found here

Our Virtual Christmas Raffle Policy can be found here

The Kidney Cancer UK Virtual Christmas Raffle is licensed by the Gambling Commission under the Gambling Act 2005, under Operating License Number SL0391
Watch again – #LWKC Webinar: Treating Small KidneyTumours

03 Nov 2020

We are pleased to be able to present the edited highlights of our #LWKC Webinar ‘Treating Small Kidney Tumours – An overview of surgery and cryoablation’ which ran on 9th October 2020.

We were delighted to have presentations from Dr Des Alcorn, consultant radiologist and Mr Grenville Oades, consultant urological surgeon from NHS Greater Glasgow and Clyde along with Mike Tunstall who underwent surgery and cryoablation treatment for his kidney cancer and kindly shared his journey and experiences.

We were very grateful to our presenters for their time with this #LWKC Webinar.

Our panel (click image to read bio):

__Presentation starts at 1m 28s __Presentation starts at 16m 37s __Presentation starts at 34m 29s
Treatment decision making in localised kidney cancer

23 Oct 2020

Kidney Cancer UK funded research on treatment decision making in localised kidney cancer.

by; Katharina Beyer, PhD student at King’s College London

There are many possible treatment options for localised kidney cancer. Due to the current absence of clear clinical guidance, there is a need to better understand how patients and health care professionals make treatment decisions.

There are several treatment options available for localised kidney cancer, but surgery has historically been the benchmark treatment. However, a shift has occurred towards treating localised kidney cancer with nephron-sparing treatments, i.e. ablation or active surveillance. Research currently suggests that these different treatments have similar oncological outcomes. In addition, some studies comparing health care systems in different regions suggest localised kidney cancer is significantly overtreated when the diagnosis is based on imaging alone, rather than pathology. A confirmed tissue diagnosis (biopsy) could improve clinicians’ and patients’ confidence, possibly reducing bias in treatment selection. To avoid this bias that causes inequality in treatment selection, we need to better understand the factors that influence treatment decision-making.

Most of the current urological literature exploring factors that influence treatment decision-making can be found in the context of prostate cancer. These were described and defined recently by our research group as covering six domains; (1) patient characteristics; (2) tumour characteristics; (3) family and social support; (4) provider; (5) healthcare organisation; and (6) health policy. However, as many of these suggestions were driven by quantitative research, further exploration of the relative influence of these factors requires a robust research strategy. Hence, the project employs a methodology directed at problem-solving, idea-generation, and determining priorities of patients, their families and health professionals.

With the support of Kidney Cancer UK, we aim improve our understanding of the decision-making process. Therefore, this project is set out to explore the outcomes, perceptions, views, and experiences related to the kidney cancer treatment decision-making process of patients and their families and of the healthcare professionals, that enable treatment decision-making.

Dr Ravi Barod

Dr Netty Kinsella

Dr Ravi Barod, Consultant at the Specialist Kidney Cancer Center at the Royal Free Hospital said “A better understanding of the treatment decision-making process will help inform future guidelines on supportive care”. Dr Netty Kinsella, Uro Oncology Nurse Consultant at the Royal Marsden Hospital adds “The requirement for supportive care during treatment decision-making is often undervalued and poorly represented in both national and local healthcare policy. This work is incredibly important as it will inform and influence future kidney cancer guidelines on supportive care as required by patients and their families”.
Join our Rate My Plate Competition

15 Oct 2020
COMPETITION TIME

Inspired by National Curry Week, we invite you to join in our cooking competition. Why not have your own family curry party in the comfort of your own home?

Here’s how it works:

Cook your favourite curry recipe, and take a picture

Post your picture on our Facebook, using the hashtag #bbcp2020

Go to https://kcuk.enthuse.com/cf/rate-my-plate-compeition and donate £2.50 to enter

The winner will receive a 3-month subscription with The Spicery Tag the spicery in post

Closing Date is Tuesday 20^th of October at midnight, the winner will be announced on Thursday 22^nd of October.

Warm your cockles us with one of these delicious recipes: –

Red Thai Prawn Curry

Chinese Chicken Curry

Sweet Potato Katsu Curry

Fragrant Prawn Curry by Ken Hom

Italian Chicken Curry by Gino D’Campo

Pork, apple and tomato quick curry by Bryan Turner